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Histiocytosis-X

Self Help Clearinghouse

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Histiocytosis Association

(BILINGUAL) International network. Founded 1987. Mutual support and information for parents and patients with this group of rare disorders. Includes Erdheim-Chester disease, sinus histiocytosis Rosai Dorfman, xanthogranuloma, hemophagocytic lymphohistiocytosis, pulmonary eosinophilic granuloma, Langerhans cell histiocytosis and familial hemophagocytic lymphohistiocytosis. Website offers the opportunity for patients and families to network. Funds research. Literature and pamphlets (some available in Spanish) and newsletter.
Write:
Histiocytosis Association of America
332 N. Broadway
Pitman, NJ 08071
Voice: 856-589-6606 Jeff Toughill, President
Fax: 856-589-6614
Website: http://www.histio.org
E-Mail: info@histio.org
Verified: 2/18/2014

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